Ethical dilemmas are not uncommon at the end of life. They can occur no matter how old the child,
young person or adult is.

Brian House Children’s Hospice has written a number of statements about some of those dilemmas which make clear the
approach we will take in addressing them. Each statement takes into account guidance from professional bodies, the
current law in England, opinions expressed by staff working here and other professionals working in specialist
palliative care, along with our assessment of the impact these statements may have on those we care for.

Each statement stands alone. We recognise that they cover uncomfortable topics but as an organisation we believe in
being open, honest and transparent in all that we do. We know that in recent years there have been some high profile
news stories about end of life care for very young children. It’s not always easy to understand the decisions that are

Our statements cover complicated issues and use language that you may not be familiar with. If you have questions after
reading any of them please ask a member of staff for clarification.

The individual statements cover:

  • Information governance and confidentiality of personal data
  • Doctrine of double effect
  • Advanced Care Planning
  • Cardio-pulmonary resuscitation at end of life
  • Individualised care plan for last days or hours of life
  • Use of medications beyond license

Position statements

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